tag:blogger.com,1999:blog-6598555847669329143.post1758412723407236056..comments2023-05-27T06:12:58.209-07:00Comments on Floating in Space: Alphabet Soupfloating in spacehttp://www.blogger.com/profile/15537720113907254640noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-6598555847669329143.post-28092578939281079252007-12-20T04:35:00.000-08:002007-12-20T04:35:00.000-08:00Thanks everyone, for your comments. This ongoing ...Thanks everyone, for your comments. This ongoing dialogue has really helped me process everything.<BR/><BR/>Kyra and SM- I have dismissed and rejected the possibility of the label.<BR/><BR/>Marla- Thanks for stopping by and for your words of support. I will be checking out your blog. I am eager to meet other parents of daughters on the spectrum!floating in spacehttps://www.blogger.com/profile/15537720113907254640noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-61706626025973710182007-12-19T20:21:00.000-08:002007-12-19T20:21:00.000-08:00i'm with you. reject that diagnosis. she's too y...i'm with you. reject that diagnosis. she's too young for it, anyway, IMO.Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-75153109341052053452007-12-19T08:10:00.000-08:002007-12-19T08:10:00.000-08:00This is my first time on your blog so I have not r...This is my first time on your blog so I have not read that much history on your daughter. Our daughter was given so many diagnosises it was terrifying. We finally picked autism and refused any further labels. Except she had recently been genetically tested and also has a Chromosome disorder which is an obvious set in stone diagnosis. I don't know why so many professionals want so many labels. Our daughter used to be very very aggressive and abusive to herself and others. Once we figured ways for her to communciate and her medications were working she became much less aggressive. It takes time and lots of tweaking. Hang in there! Check out my blog and my daughter's blog. Her's is www.maiziebaltes.blogspot.com<BR/>She used to have this diagnosis. PTSD, ODD, OCD, BP, Autism, GAD, Seizure Disorder, Mental Retardation, SPD, Attatchement Disorder...just to name a few.Marla https://www.blogger.com/profile/03926898159751613267noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-52371840538375365422007-12-17T06:26:00.000-08:002007-12-17T06:26:00.000-08:00i agree. you know, someone could easily slap that ...i agree. you know, someone could easily slap that on fluffy, given the resistance he has offered up in the past in so many situations. i think any of us, feeling pushed to the wall, would snap back with defiance. maybe it's appropriate? given how it feels inside? <BR/><BR/>i'd say, go with your gut. if the 'diagnosis' doesn't ring a bell, dismiss it. how does it help? sounds like you are already doing amazing things to provide support and encourage growth and connection.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-67038274439249286722007-12-16T19:30:00.000-08:002007-12-16T19:30:00.000-08:00No, you absolutely would NOT ... excellent point.No, you absolutely would NOT ... excellent point.tulipmomhttps://www.blogger.com/profile/05907116512448724052noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-2813879902610444112007-12-16T19:05:00.000-08:002007-12-16T19:05:00.000-08:00Tulipmom- I couldn't agree with you more. The beh...Tulipmom- I couldn't agree with you more. The behavior is directly related to the sensory, the anxiety, the ASD, not ODD. The biggest thing I see with Kate that makes me believe it is not ODD is that she shows remorse. She is not an angry child looking to make my life miserable or to get revenge. She is an emotionally reactive child who has difficulty regulating herself. When she loses it, she's frustrated. Once she calms down, she feels bad about what happened and says she's sorry. I don't think we would see that if it was ODD.floating in spacehttps://www.blogger.com/profile/15537720113907254640noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-72341285127102037582007-12-16T01:06:00.000-08:002007-12-16T01:06:00.000-08:00I culdn't agree more with your feelings on this la...I culdn't agree more with your feelings on this label.<BR/><BR/>At our last IEP meeting, the guidance counselor brought up ODD with regard to my son. Interesting since of all the people on the team, he's spent the least amount of time with my son. Yes, he can be stubborn (very) but it's all tied to the sensory issues and the anxiety from the Asperger's.tulipmomhttps://www.blogger.com/profile/05907116512448724052noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-14651123288274474102007-12-10T04:35:00.000-08:002007-12-10T04:35:00.000-08:00Maddy- From the reading I have done so far, I have...Maddy- From the reading I have done so far, I have not found anything either. <BR/><BR/>Kristen- Thanks for your kind words. <BR/><BR/>Lori- I don't think the label is relevant either. True that we do see some of the signs sometimes, but it is not pervasive enough to justify a "diagnosis"floating in spacehttps://www.blogger.com/profile/15537720113907254640noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-2694841543513157672007-12-09T18:51:00.000-08:002007-12-09T18:51:00.000-08:00You already know how that I think the ODD label in...You already know how that I think the ODD label in general is some kind of cop-out. Like, "well your kid is a problem, and we just can't get them to do what we think they should so that means they are defiant", hence ODD. <BR/><BR/>It is insulting and unproductive and in Kate's case, IMO, not even close to relevant.Lori at Spinning Yellowhttps://www.blogger.com/profile/09820406823337728514noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-73726791336911082062007-12-09T16:18:00.000-08:002007-12-09T16:18:00.000-08:00I agree. The label won't change anything. I have a...I agree. The label won't change anything. I have a hard time with the labels, they give people something to hang on to, something to make sense of what often doesn't make sense. But for our kids, for any kid, really, the label does not define who they are or what they are capable of. <BR/><BR/>Very often we need the labels to get the services. But the services are the same, regardless of what we call it. <BR/><BR/>Trust your instincts. If you think the label is pointless, then resist it. It's not like you are denying her services, or holding back in any way. Just keep doing what you are doing. Kate is so lucky to have you and to have you looking out for her in such a thoughtful and caring way.<BR/><BR/>Hang in there. Sending a hug.kristen spinahttps://www.blogger.com/profile/12099514779097752438noreply@blogger.comtag:blogger.com,1999:blog-6598555847669329143.post-13202787002278275172007-12-09T14:46:00.000-08:002007-12-09T14:46:00.000-08:00From your link on ODD they don't appear to have an...From your link on ODD they don't appear to have any particular behavioural therapies or interventions to help.<BR/>BEst wishes<BR/><BR/>This is my calling card or link<A HREF="http://whittereronautism.com/" REL="nofollow">"Whittereronautism"</A>until blogger comments get themselves sorted out.Maddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.com